General ALS Info

What is ALS? - ALSA

Facts About ALS - MDA

What is ALS? (with video) - Project ALS

ALS Untangled


Crowdsourcing/Prize Info

InnoCentive

X Prize


Potential Funding Sources

Prize4Life (prizes/results-based funding only)

ALS Association

Dept. of Defense Congressionally Directed Research Program in ALS

European Union Joint Programming Neurodegenerative Disease

International Alliance of ALS/MND Associations

Massachusetts General Hospital Neurology Clinical Trials Unit

Muscular Dystrophy Association

Muscular Dystrophy Association Venture Philanthropy

NIH Therapeutics for Rare and Neglected Diseases (TRND) Program

Packard Center for ALS Research (at Johns Hopkins)

Project ALS

 

Networking Resource

ResearchGATE (an online collaboration and communication tool for researchers)


Other Research Resources

ALSTDI Animal Study Data The ALS Therapy Development Institute has conducted the largest SOD1 mouse screen of potential therapeutic compounds in the world. This is a link to the results of those screens. There are other interesting research resources on the site as well.

ALSTDI Research Pipeline Dynamic list (updated quarterly) showing the stage of development for various potential therapies currently under investigation at the ALS Therapy Development Institute (sorted by mechanism).

Alzforum The Alzheimer Research Forum main site includes databases of antibodies, animal models, and gene associations for other related neurodegenerative diseases

Clinical Trials Summary lists all ongoing clinical trials around the world

National Amyotrophic Lateral Sclerosis Registry  The Agency for Toxic Substances and Disease Registry (ATSDR) has developed this program to collect, manage, and analyze data about people living with ALS.  This information will help doctors and scientists learn more as they work toward a cure.

NEALS The Northeast ALS Consortium is the largest consortium of ALS clinical investigators in the US. NEALS runs both the largest US pooled data collection of ALS clinical trials data as well as a biorepository of ALS patient clinical samples.

Phenotype-Genotype Integrator (PheGenI, pronounced FEE-GEE-NEE) pulls genetic and genome-wide association studies (GWAS ) data from multiple NIH databases and allows researchers to select a physical trait or phenotype and find the genomic variants associated with the search term.

SciClips SciClips is an open innovation platform for scientific breakthroughs, collaboration and philanthropism.  The ddTargets (drug targets/disease target) database is an open access database for novel/potential therapeutic drug and vaccine targets, reported in patent applications and published research articles. All novel drug targets are linked to PubMed, Google Scholar, GeneBank, UniProt, ChemEMBL, Google patents, European patents, WO(PCT) database and Google Patents.

WFN-ALS the World Federation of Neurology Research Group on Motor Neuron Diseases Publishers of the ALS Journal