General ALS Info
What is ALS? - ALSA
Facts About ALS - MDA
What is ALS? (with video) - Project ALS
International ALS Resources
European Network for the Cure of ALS
ALS Liga Belgie
Fondation Thierry Latran
Potential Funding Sources
Prize4Life (prizes/results-based funding only)
Alzheimers's Drug Discovery Foundation (ADDF)
Association for Frontotemporal Degeneration (AFTD)
Dept. of Defense Congressionally Directed Research Program in ALS
European Union Joint Programming Neurodegenerative Disease
International Alliance of ALS/MND Associations
Massachusetts General Hospital Neurology Clinical Trials Unit
Muscular Dystrophy Association
Muscular Dystrophy Association Venture Philanthropy
NIH Therapeutics for Rare and Neglected Diseases (TRND) Program
Packard Center for ALS Research (at Johns Hopkins)
Other Research Resources
ALS Consortium of Epidemiologic Studies (ACES) is a resource that can be used to identify lifestyle, environmental, and genetic determinants of ALS.
ALSoD is the ALS online genetics database which houses a list of the known mutations in ALS.
ALS TDI Research Pipeline Dynamic list (updated quarterly) showing the stage of development for various potential therapies currently under investigation at the ALS Therapy Development Institute (sorted by mechanism).
Alzforum The Alzheimer Research Forum main site includes databases of antibodies, animal models, and gene associations for other related neurodegenerative diseases
Clinical Trials Summary lists all ongoing clinical trials around the world.
National Amyotrophic Lateral Sclerosis Registry The Agency for Toxic Substances and Disease Registry (ATSDR) has developed this program to collect, manage, and analyze data about people living with ALS. This information will help doctors and scientists learn more as they work toward a cure.
NEALS The Northeast ALS Consortium is the largest consortium of ALS clinical investigators in the
US. NEALS runs both the largest US pooled data collection of ALS clinical trials data as well as a biorepository of ALS patient clinical samples.
NINDS Human Gentics DNA and Cell Line Repository The NINDS Repository has a growing collection of human samples collected from ALS patients, as well as other neurological disorders.
Phenotype-Genotype Integrator (PheGenI, pronounced FEE-GEE-NEE) pulls genetic and genome-wide association studies (GWAS ) data from multiple NIH databases and allows researchers to select a physical trait or phenotype and find the genomic variants associated with the search term.
Preclinical SOD1 Model Resources, including SOD1 Mutant Rats and SOD1 Mutant Mice.
PRO-ACT houses the largest ALS clinical trials dataset ever created. PRO-ACT consists of over 8,500 ALS patient records from 18 completed Phase II and Phase III clinical trials conducted by companies including Sanofi, Teva, Novartis, and Regeneron.
SciClips SciClips is an open innovation platform for scientific breakthroughs, collaboration and philanthropism. The ddTargets (drug targets/disease target) database is an open access database for novel/potential therapeutic drug and vaccine targets, reported in patent applications and published research articles. All novel drug targets are linked to PubMed, Google Scholar, GeneBank, UniProt, ChemEMBL, Google patents, European patents, WO(PCT) database and Google Patents.
WFN-ALS the World Federation of Neurology Research Group on Motor Neuron Diseases Publishers of the ALS Journal
ResearchGATE (an online collaboration and communication tool for researchers)